Best wishes please! {Update}

medtran49

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Sorry, haven't been on much and this forum doesn't show up in "new posts". He's still not doing well. His mental state is just not there for the most part. Sometimes he's kind of sort of here, but not all the way, sometimes he hallucinates various things, sometimes he goes way back in time, like 15-25 years, he has no short-term memory at all, doesn't even realize how long he has been in the hospital. Speech is slurred, even during "good" periods. Unintelligible at times, not making sense at all at times. He gets angry and frustrated because we won't let him out of bed and with communication issues. Restless, agitated, then with periods of sleep so deep you can barely wake him up. Keeps insisting he can walk, though he can't, he can barely stand up and has to have anywhere from minimal to maximal assistance to do that depending on his mental state. They can't figure out what is wrong with him. He has good strength and no deficits, other than he sometimes forgets to move his left arm (side of broken leg) when they are doing PT exercises to keep him strong and tends to lean to that side when they have him sitting on edge of bed. He's had a couple CT brain and they were okay, last about a week or so ago. Did an MRI brain this morning so don't have results yet. He is also scheduled for EEG, as he has either shaking chills or tremors or seizures at times. Says he is cold, we cover him, and then he throws them off, so don't know if he is really cold or not. Can't keep a gown on him either. His neuro exam is fine, other than that teeny tiny neglect of his left arm. when doing various exercises. He was a bit better today after he finally woke up, but got petulent and ugly when I wouldn't bring him home when I had to leave for work. But, he's been doing better before and then nearly totally regressed back to like he was when he first went crazy, happened again earlier this week in fact.

I'm just so tired and so discouraged and afraid. And, now, there are a bunch of new COVID cases coming into the hospital I was told today. One floor is nearly full of them, so I've got that to worry about now.
 

Sass Muffin

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I'd be losing my mind if I were you medtran.
That's AWFUL to be going through that with all the stress and worry.
They did tell you it's likely POCD, right?
That can last a long time.
You're certainly in my thoughts and prayers.
 

medtran49

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No, they haven't mentioned that, although we were talking about his leg today and 1 of the docs mentioned something about the ortho doc not wanting to put him under general anesthesia again. He cracked his calcaneus thrashing around, but it didn't separate so doc doesn't want to do anything with it. Also forgot to mention, his spatial orientation is off at times. He'll reach way back past his plate when he is eating to pick up some food or he'll try to sit his glass down in the middle of his plate. Sometimes he can feed himself, sometimes he can't so he's supervised when eating.
 

QSis

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I'd be losing my mind if I were you medtran.
That's AWFUL to be going through that with all the stress and worry.
They did tell you it's likely POCD, right?
That can last a long time.
You're certainly in my thoughts and prayers.

Glad to hear from Karen, even though her news is scary.

I had to look up POCD. Sure sounds like it to me. And, yeah, it could last months. DAMN!

Lee

What are the symptoms of postoperative cognitive dysfunction?
Manifestations
Postoperative cognitive dysfunction (POCD)new cognitive deficits that appear postoperatively (impairment of: memory, ability to combine tasks, psychomotor dexterity, etc.)
Deliriumcognitive deficits, hallucinations, fluctuating state of consciousness, and other manifestations
 

Sass Muffin

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My one hope is that he gets to that stage where he can begin PT/OT, and have a road to complete recovery.
I have a feeling it's going to be a long one.
Two things:
Take care of YOU right now, medtran.
That's very important.
Also, I'd be looking into some sort of legal advice as well.
Didn't even want to mention that, but.. there you go.

Please please keep us updated.
Once again, take care of yourself and the 4 leggers at home.
 
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QSis

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My one hope is that he gets to that stage where he can begin PT/OT, and have a road to complete recovery.
I have a feeling it's going to be a long one.
Two things:
Take care of YOU right now, medtran.
That's very important.
Also, I'd be looking into some sort of legal advice as well.
Didn't even want to mention that, but.. there you go.

Please please keep us updated.
Once again, take care of yourself and the 4 leggers at home.

Wise advice, Lolly!

Lee
 

medtran49

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Well, I got the great news this morning that he has had a stroke in the PCA distribution, which is causing the speech and spatial issues. It's apparently not too bad though at least. I told the docs either Sunday or Monday that I thought he'd had a stroke because of the way his face looked while he was sleeping the day before, but they didn't think so because his neuro exam as far as strength and cranial nerves was fairly normal. He's still bouncing back into the past as far as memory. Thinks both his brothers are alive and healthy and they both died years ago with lung cancer. I don't know whether to remind him they are gone or not. Guess will discuss that next time I see 1 of the docs. I was just so, I don't know what, when doc told me about stroke this a.m. even though I already suspected it.
 

QSis

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Incredible, just incredible! The man broke his limb, for heaven's sake!

Sending you both positive, healing thoughts and strength!

Lee
 

medtran49

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I am so angry. He apparently had a bad night Saturday and they called in a different psychiatrist in the middle of the night, who put him back on Ativan/benzos, which I and his other docs, including regular psych, don't want him on anymore due to the way they effect him, as well as way upped another med. Gen doc came in and told me about it yesterday a.m. He stopped the Ativan immediately and said he was going to note again in chart. However, that requires someone actually reading the chart. I'm thinking about putting a sign up in his room. I've got to get the other med issue taken care of today because I didn't notice it until I was looking at his med list last night.
 

Sass Muffin

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Ativan isn't really that harsh of a drug, depending on the dosage.
I wonder if he would do better on something like klonopin?
Clearly he needs to be on something for anxiety and restlessness?
Good luck with his treatment and you need to have your voice heard loud and clear with his team of care givers.
 

medtran49

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He did pretty well today. I was there until almost 1 than had to come home to work. He was making conversation, though it didn't always make sense, with staff that were in and out of room. He got testy with me a couple of times because he was being insistent about calling somebody he had an appointment with today and I kept telling him he didn't have an appointment with anybody, that he's been in hospital for 3 weeks. Had to tell him to calm down several times, but he was able to. Hopefully, he did well rest of afternoon and into this evening. The very , very nice nurse's aide is there until 7:30 p.m. our time today, and she can get him to calm down because he likes her. All the staff kept remaking on how much better he was today.
 

Sass Muffin

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It's good that the state of Florida has patient techs available to be there.
Nurse aides have pretty much been phased out in hospitals here as well as LPNs like myself.
I'm happy he had someone to calm him down.
Aides are good at that.
I know because I used to be one.
😊
 
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